Red Blood Cell Formation showing mutation H63D Iron

 in one of the forums, polycythemia was mentioned. i asked some questions, and think i gave the person enough information to ask her Doctor, as Multiple Sclerosis may of been plausible for what my blog was saying, and what was told.

 Everchangingms.blogspot.com I could go and try to explain How Red blood cells are formed, how this relates to my H63D gene mutation, and how this relates to Multiple Sclerosis, Iron overlaod, Thick blood, but I think its better described by this guy.

 you dont need to be a scientific person, or even know the terms he talks about. Just follow the video, the best you can. this will give you questions to ask your Doctor, or a understanding of what your Doctor is talking about. polycythemia, thick blood, hereditary Hemochromatosis, gene mutations, blood letting, vein punctures, phlebotomy, or just low in iron? Multiple Sclerosis, or a wide range of items that comes with MS?

 this is Part One of two parts of blood formation. i have this guy on other Videos, to explain my blood, 

Expert Doctors I go to at the University of California Davis, USA 

 Many genes are tied to Multiple Sclerosis. Hereditary Hemochromatosis runs in both my family lines. hard to get people to understand. Many Specialized Doctors and Science looking into this on me. They know as far as their specific specialized medicine, so you need to put the parts together sometimes. I use them all as team members, letting each one know of a part they have found. Its always something new, and some blogs, I still need more input and test done to find out more.

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But thats the blog this week.

 happy holidays to those around the world and remember to join my blog, and follow me

  JoeY

Poetry by Robet Gillett in MS Focus Magazine

 Everchangingms.blogspot.com. featuring Blogger Robert Gillett

This poem, just written by Robert Gillett, from the blog, beneath the tracksuit.

You can find his link to the right.  This was published on page 44-45 of MSFOCUS.ORG magazine, volume 23, issue 4, Fall 2021

Robert has a great blog going, and now published in a magazine.  You may need to get a free copy of the magazine to read this, or check out his blog, from my reading list.

I will leave you with his blog to read from today,  as I deal with my MS and Dr setbacks of rescheduling six months away.  Glad to have his support staff. This Dr works in the ER room, and with this new covid strain, omicron, and him being head of staff,  he is busy.

January, I will see my MS Neurologist in person.

Cheers 

Joey

 

Ten years and a Team of specialist for MS

 

Everchangingms.blogspot.com

Ten years plus into MS , and a great team of experts working with me, not on the list is the entire support team behind the scenes, who answer emails, get medicines approved and much more. This is only part of my team.

Hope you can click to enlarge this to show you the expert Dr Specialist that are part of my Team.

There Are Many more in the background that are not pictured, like the Staff who checks me in, the nurse who takes my vitals,.

A entire team behind each Dr to check emails, to get Approval of Medicines, Prior Authorizations, ones who are on top of everything, to keep Drs running Smoothly.

Doctors who specialize from Sacramento Heart, eye optometrist and dental team from the Mact Clinic.  There is the opthamologist, A skin specialtist,and their staff.

The testing staff, and their Doctors, that did Sleep studies,  plumagology studies, studies following trials with access to pharmaceutical grade items. A neurologist that had the expertise to do a spinal tap in his office, all the test with waveforms and scribble lines he had to make reports on. 

Keeping track of progression over ten years, has tons of paperwork, now done on computers.

Its a team working to solve mysteries.  To Try items that make me more comfortable going past the Ten Year mark With PPMS.

A Great GP that listens.  A Endocrinologist who goes above and beyond to question items.  My Botox Neurologist who can find the exact knots, and wants to keep learning how MS is progressing.

A journey that is written down for science to understand. A blog, but more notebooks, and much more information at DNA research sites. DNA that shows different parts in families. Sibling with same or different diseases.

A community of blogs followed and read to understand my complexity of primary progressive multiple Sclerosis. From Bars of London, to distant lands

The many medicines needed to keep me going , and the weird items used, from vein punctures for hereditary Hemochromatosis, to the weird genes I have came up to ask about, and strange test they have made up for me.

But for all, a Happy Holidays, and stay safe and healthy for this next year

Joey