IBS and MS
Yes, it hits kinda unexpectedly. First it was being plugged up. Bowles creating hard lumps that would not pass. Generlac was prescribed eight years ago. A nother Dr, playing Dr did not know anything, and increased the Generlac to the point of having accidents at any given moment.
A test for Swallowing was done, by eating radio active food, and the Drs and entire staff watching how it slowly, and I mean slowly went from mouth to stomach.
Esophageal mobility disorder was given. Metoclopromide to help the muscles move food thru was also prescribed. Apparently A drug used in many MS patients.
Then came
A upper and lower GI was performed. The Dr made it to believe I had Ulcerative colitis, when coming to. Yes, have them knock you out for this procedure.
Getting test results a few years later, besides the one they gave me was like pulling teeth. I received the Anesthesia report, which showed some problems they had. I was to take VSL#3.
But since I started Bloating, a condition Kim Dolce describes quite well in her blog,
I have gone thru all the test she has, looking for small intestine overgrowth of bacteria, a breath test to see how much methane I was producing. Could not pass a dui test haha..
This is a part of your insides that starts inflating like a balloon. Yes, eight inches in diameter I would blow up. Think of Willy Wonka , Charlie and the chocolate factory. Their was this naughty girl, who insisted on chewing gum. And when it got to the blueberry flavor, she blew up like one.
The difference is its only in the stomach, waist that swells up. If I could prick the skin stretched so much with a pin, I would.
A different GI, I went to and a Smart GO, showed me why I did not have UC, but IBS.
That was a good thing, but what is the plan of action to take?
A article,
CAN HYDROCHLORIC ACID IMPROVE YOUR DIGESTIVE HEALTH? – ADVICE FROM DR. ROBERT MARSHALL, PHD
This I have not tried yet. I see the GI every three months, so will ask.
I did a viome test to see foods on food map, to see my super foods, ones to avoid, and ones that were good. This perhaps pointed me in right direction of foods, but recommendations of other items my GI Dr questioned. He sent me to a nutritionist to verify.
Things I have learned:
People with MS are low in Bile production.
Multiple sclerosis (MS) patients have lower than usual levels of molecules called bile acids circulating in their blood, a study found. These molecules, produced in the liver to aid fat absorption in the gut, also appear to block inflammation and nerve cell damage in the brain.Mar 31, 2020
little bit of research led me to an article published in the Oman Medical Journal. The study suggests patients with irritable bowel syndrome have a high rate of vitamin D deficiency.1 Another study published in the International Journal of Medicine found that patients with IBS who have low vitamin D serum levels showed an improvement in symptoms when treated with vitamin D therapy.2
I am on high dose of vitamin D, being monitored by a endocrinologist, so knew this was not a problem with me, but others, may have a deficiency. Be monitored if taking high doses, as calcium build up could happen.
But this led me to add ox bile, and bile acids, along with a host of other supplements one at a time to see how my body reacted.
Some of what I have tried
Lactobacillus rhamnosus GG 5 billion cell
L-GLUTAMINE 500 mg Capsule
SODIUM BUTYRATE
PancreatinPANCREATIN-LIPASE-PROTEASE-AMY PO
Cinnamon
BERBERINE-HERBAL
Magnesium
N-ACETYL-ALPHA-D-GLUCOSAMINE
Alpha lipoic acid
LACTOBACILLUS REUTERI PO
Vsl#3
Diets, did many.
Find most MS patients get a wrong signal telling muscles in intestines how to move. Metoclopromide put on years ago for delayed emptying (slow moving from mouth down).
Esophageal mobility disorder.
Then tried many type of probiotic, even VSL#3, and then to pre biotics. List goes on.
Apparently MS people are low in Bile acids also. So now on ox bile, and bile acids that break down fats, and carbs with a handful of other pills.
Chia seeds, flax meal, figs, psyllium husks, seeds, potato starch, benefiber, quinolla, all tried
A tiny pill that has simethicone (Wal-Mart brand) has relief helps the bloating.
Still alternate, but linzess has been best, keeping me going (either liquid, soft, controlled by how much lactulose used)
Always looking to find out what others use.
too much pressure from not the bloat, but from constipation can really cause damage. The Bloat, quite uncomfortable. Puts 8 inches more On me.
Would love others experience, or what works.
Thank you for reading
JoeY
