MS focus magazine has a great link for symptoms of MS. I don't think I need to repeat a great story already written, so here is an appropriate link.
https://msfocus.org/Get-Educated/Symptoms-of-MS
I was diagnosed with Primary Progressive Multiple Sclerosis a decade ago it seems. Copaxone was one of the only Disease Modification Therapies, "DMT" availiable for me.
I've hit everything on this list above plus more. Each are additive, so you never get better.
My double vision, was just a ongoing part of optic neuritis to this date. Clenched fist, a old time heart medicine, clonidine, was used to for my MS. It released my clenched hands up.
My first real neurologist specialized in MS., was out of my county, referred by a smart country Dr, who had dogs and birds in his office. i New his animals by nane.
Even though the local bandage hospital in my county had put NO MS in large print, the lady who read all the MRI, had no experience with MS. I asked for a copy, this is when they were still on large film images. Many were taken. My local GP, said " they did not go far enough". This is before I knew he suspected MS.
The new neurologist was a smart guy who listened, short in words though. He looked at my images, and said they took some great ones. He then scheduled me for a Spinal Tap the next day in his office. Yes a skilled surgeon, he did this procedure, with me lying flat on my stomach.
I can not go into graphics, as could not see the big vial of spinal fluid taken out, or other instruments used to keep pressures proper, just told to keep still. Yes you feel size of needle penetrate the skin, but that was all, as area was pre numbed.
Many more blood test were taken to rule out anything else other Drs may of missed.
I went home, kept laying down, keeping hydrated all day. Had no problem.
The next visit, to go over the results, of what he found in my spinal fluid, was parts of the Mylen floating around. Brain matter suggestion of MS. The lesions on the MRI, of one old one and three active ones, were as clear as day, if you knew what you were looking for. He showed me on the film.
He thought I had MS going in for some time, looking at first lesion. But I was diagnosed fast. First year i was mis diagnosed of Cryps. chronic regional pain syndrom. A year on opiioids and enough morphine, the pharmacist thought I was picking it up for someone on their deathbed. This all change with the proper diagnosed primary progressive Multiple Sclerosis, along with degenerative disk disease.
I was weaned off the morphine and opioids. Lyrica and cymbalta are used to treat the pain. Looking back, not all generics are the same as the real name brand. Name brand is needed.
Copaxone was started at that time, Matt had a video I watched on how to inject. He was twenty. I also started Botox treatments deep into calf muscles, as the maximum muscle relaxer, Baclofen had been used. . I have kept up with this treatment, going up on botox treatments, now being done at the University of California Davis, as amount needed, and the retirement of my neurologist.
I even went to asking my neurologist I had questions from my book on ideas, tried, or being studied. Tonic water was mentioned, because of quinine it had. I researched, and found Jeffery Morgan's recipe for making tonic from the quinine tree bark. I went over this and calculations of how much I could take to obtain results. 22 grams I shot for, or a shot glass. I did not use sugar, as weight gain from other medicines.
But quinine stopped major spasms. A conversation also got us talking about a tablespoon of mustard taken. It also stops spasms. Drs do not know why, as taken oral, and must go thru the digestive system. There are other items tried, that have worked, like taking pure turmeric curcumin, before they became in a pill and have junk put into them. A digital scale was purchased, reading down to milligrams. I found a pure INE in London finally.
Hyaluronic Acid was tried, to put space between bones. This was finally found in london, with the pure form needed, now in a pill form that works. Chrodrotion sulfide was added to help strengthen ligaments.
AlA, alla lipoic acid, was added by my UC davis neurologist. All supplements went thru my neurologist, to see if they would hep, or were just a snake cure. A supplement was given by neurologist, but on second visit, was why did the contaminate the good ingredients with a questionable one. I still get adds from this company and question their products, along with all the others, like magnesium used to assist in keeping muscles relaxed, what is its purity.
What is really in it, quality?. . vitamin D was added, as I was At rickets stage. A Endocrinologist has followed my journey. I am needing over 180,000 Iu weekly to keep a #80 score to protect my MS, as this shows to be the best protection at a dose #80-100, but keeping calcium out.
I am also on Testosterone Therapy. Many Priorblogs will show this. Used to keep muscles going with me, but also can be related to thick blood. The cancer center took DNA checking to find iron overload to add to my ever growing list. A Rare H63D geems. They thought It was the testosterone therapy, as had been on mega amounts, due to a oversight of a decimal point. But a quick stop to this, and six months to get it out of my system, a MRI of the pituitary gland showed I was low. On small amounts till they figure my thick blood out.
That is a problem.
Guess this is where I stop your reading, letting you go back in time to read other blogs. I have posted some great videos about how blood is made, heartbeats, and phlebotomy done, MS symptoms and guess what's not posted yet.
Cheers, like the poist, join the blog,
JoeY
