Butterf!lies and Multiple Sclerosis

 

New youtube channel.     Youtube.com       Everchangingms

                                 Butterflies and MS

Why even call or say something like this? Seems strange on its own, but I. Am sure everyone can relate.

"The life cycle of a Painted Lady butterfly is approximately three weeks. Female butterflies usually lay their caterpillar eggs around 5-7 days after emerging from their chrysalis. Baby caterpillars hatch from the eggs after three days. The growing caterpillars will then eat for 10-12 days before forming their own chrysalides. Finally, adult butterflies will emerge from the chrysalides after 7-10 days, starting the life cycle all over again!"

What does this have to do with MS?  There is a term used like I have "butterflies in my stomach", usually referring to the unknown, or a churning feeling given at any moment.  This can manifest into the above cycle of learning, exploring, and redoing the same as new items are found.

RimabotulinumtoxinB (Myobloc), also called botulinum toxin type B, is made from the bacteria that causes botulism. Botulinum toxin blocks nerve activity in the muscles, causing a temporary reduction in muscle activity.

Myobloc is used to treat cervical dystonia (severe spasms in the neck muscles).

I have many unknowns with Primary Progressive Multiple Sclerosis. This includes waking up with shooting zaps from my legs and neck muscles, wondering if they will support me.  On other blogs, I talk about the 

                                  Black Box Warning.

This is for  botulinum toxin type b I recieve every three months. Its cycle is like a butterfly. Mine is injected with fine needles into many muscles of my calves, neck and thigh muscles. The botulinum toxin then starts to spread over the next few weeks, making its cycle of reproduction into, deadening overactive muscle nerves that are part of my Multiple Sclerosis sending to them erroneously.

symptoms can also occur in adults treated for spasticity and other conditions, particularly in those patients who have underlying conditions that would predispose them to these symptoms. In unapproved uses, including spasticity in children and adults, and in approved indications, cases of spread of effect have occurred at doses comparable to those used to treat cervical dystonia and at lower doses.

The botulinum toxin continues its life cycle, for me, lasting about 52 days. Short of the 90 days, that is required to wait for the next injections, or new cycle to begin. 

Even on with a computer guidance system, the professor of the Neurological department, knows which muscles, injections, spots, muscle names, and where he is trying to obtain the best result, using the entire allotted amount of botox in many sites.

Of course, not all sites get addresses at a single visit. It takes time for the botox to multiply and travel into and thru the muscles. A Cane helps me walk into and out of his office, feeling immediately the botox injection.

A black box warning

The botulinum toxin contained in this medication can spread to other body areas beyond where it was injected. This can cause serious life-threatening side effects.

This is where the benefits outweigh the risks for me. A special form is signed by me before the neurologist can inject.

A weird process to look forward to, that I just had done, and done since the beggining of my diagnosis, every three months.

 And the butterfly process begins again.

As far as butterflies in my stomach, is always the unknowns. I can research many items. Some outside my control, some just numbers that specialists look at from blood work.

There are items I share with my Neurologist, I will post links in another blog to keep you reading. They thank me for the links, as it pertains to the Rare H63d genes I have, and also  to specific topics. You (my audience) gets to wait until I see the proper specialists, so I can obtain their perspective.

Anyways, thanks for reading!

Post comments below, or on my new YouTube channel by looking for Everchangingms on YouTube.    Everchangingms 

Or copy link below

https://www.youtube.com/channel/UC98yB2domLErZ1qpfe5VUfg

Like my videos, And be sure to comment as this helps obtain more views.

Stay Safe

JoeY