They start as a beautiful caterpillar. Walking with many legs, inching along.
Then they have to spin a web, cocoon, keeping it protected enough to make a transformation into this creature we know as a butterfly.
With wings to fly around, flowers , each with their fragrance and taste. With others that also make their transformation. Their lifespan measured in minutes, being years to them.
Smart creatures to obtain such a transformation, and knowledgeable about what flower to try. Caterpillar
I wonder if they, the butterflies, come down with any neurodegenerative diseases thru their lifespan. Would it be interesting to be a butterfly for a while? A minute would be a year.
Just a thought, as MS is ever changing, and different for each individual for some reason.
A article in Readers Digest , April 2019, page 45. "New tool predicts MS Disability". It points that Iron could be a precursor, as found in many MS patients "
A research article I found is here from Healthline.com
That is the second neurodegenerative diseases I deal with. The H63d /H63d gene, part of the HFE iron regulator changed a protein that tells the DNA gene to be On or off that controls the uptake of Iron.
I did 17 phlebotomy's since October 2018 thru January 2019. Seven months later, I stay real low on Iron. Slightly anemic, but do not see them doing any phlebotomy for the rest of the year. I will see the cancer Doctor next month, that may shed light on why I am staying so low in iron. Your blood is replenished every three months by your bone marrow, so it is strange.
I also must note that my GO Dr went on to further his education. This has actually left me in the hands of a real good GP, who is the head of all the clinics. He listens, and can tell from reports done by other Doctors, what is going on. He said the best Activist is myself. If you have a disease, you sometimes know more than the Doctor. A good Doctor will tell you if he does not know, or Send you to a specialist, or even another specialists if he thinks the first one did not go far enough. My GO Dr gave me his new email to keep in touch. That meant a lot. I do have another GP, that I stay in touch with.
My GI issues have been ongoing, and I tried to figure what changed at the beginning of 2019. No new meds, but a major change. I did a ubiome gut report in the first quarter. Glad I did, as the Feds raided ubiome, and closed them down for insurance fraud.-----------Cnbc news article ubiom raided by feds
I am Trying to decipher months later what my Gut may be missing.
The phlebotomy helped lower my triglycerides.
Mutations in the HFE gene, favoring iron overload and causing hereditary hemochromatosis, are associated with primary hypertriglyceridemic phenotypes. I was in this stage.
The HFE gene makes a protein in the intestine that regulates how much iron your body absorbs from your diet, including your food, vitamins, and medications. If you inherit two mutations in the HFE gene, it does't work properly
https://academic.oup.com/jcem/article/94/11/4391/2596710
https://academic.oup.com/jcem/article/94/11/4391/2596710
The change I realized, was the amount of phlebotomy done, and becoming anemic. But this did not account for the Gut Microbes missing. I did stop the VSL#3 ds pro biotic, as I did not have Ulcerative Colitis, as led to believe for two years. New GI Doctor and GO Dr, showed me diagnosis, and why this Dr led me to believe I had UC. But I did not have symptoms.
VSL#3 ds may be crowding out the good bacteria. --------------------------------------------
My new GI Dr at the university of California, had taken me off Metoclopromide, which is used in MS patients to help gut muscles move. He put me on Trulance, that caused accidents. Something nobody wants to talk about. He put me back on metoclopromide, once knowing how much that was helping, a three months off period.
I was switched to Linzess, polyethylene Glycol (miralax), along with Generlac (lactose).
I tried adding psyllium hulls, with no success.
I read up on many good probiotics that work in the lower Gut, so my new protocol is trying different ones, and to see if they will help. If anybody has recommendations, or a company Needs a review of their product. let me know! Even looking at ones to help improve the mood.
Both my new GP, and GI Doctor agreed on keeping the protocol, to keep things moving, without straining.
Seems to run as genetics I believe. As have siblings and my mom with similar issues of gut and intestines not flowing as perfect. I find in genealogy of many prior generations having same issues. They wrote it differently, and did not have medicine that is now available. This can cause many problems, if chronic constipation is ongoing. Much more if you are dealing with Multiple Sclerosis. So No Straining, use a block of wood to prop your feet on, and reading material to relax and read. Yes, that is the protocol now, for those that were told different.
Ok, back to being a butterfly for the moment. https://youtu.be/io6Yi_z7SpY
Cheers
Thanks for reading, and leave me some feedback!
JoeY
