Seems my blogs get far and few. Many reasons. More Specialized Doctors added, some top of the top working with me. I had the pleasure of meeting one, who came out of retirement, to work his specialized clinic once per month. A six month wait to get to talk with the Dr, and two others, plus student learning, as I was listening also.
These Drs specifically specialize in one field. Like one box you do not stray from. So he did not know of other diseases, just generally. I was his first MS Patient in all his years.
Excellent at his knowledge. That was what he was teaching me in the hour spent. He did a lot of reflexes and watched me walk, talk, movements. A new toy to "try" for five minutes a day, perhaps 15 minutes. That was the only thing left he could offer.
My MS specialist is awaiting a new mylan repair medicine.
The Day before, I saw my MS Botox neurologist. He had a new Dr with him. I let the new Dr put the botox into my muscles. He was not afraid to ask for assistance finding muscles, asking my main Dr there. I look forward, as these shots help me stay active and walking. I have to sign a Black Box Warning for this medivine.
I have been seeing this top dr in his field and his co Specialist and his team for this last year. They were able to bring my blood pressure and all readings into a normal range. half of what it was.
I brought my iron up into normal range, by stopping curcumin turmeric for a day, eating beef liver ( high in Iron ) and back onto supplement. Retested, and my being iron deficient for three years after my phlebotomy or vein puncture, all went away.
Yes a DROP in blood readings
Now I am not a Dr, but would of liked to of been a birdie listening in on how Drs (in their own boxes) can disagree on symptoms and what even their test may say is going on with me. The phone call to all these other Experts in their own field., and their perspective, or what left is a option.
All I can share now is I have Primary Progressive Multiple Sclerosis. This is effecting my whole body, in ways I would never imagine. Hereditary Hemochromatosis with the H63D H63D gene playing a role, overlapping Endocrinologist, hematologist, Neurologist,GI, nephrologis,, and 23 more to list. That are overseeing My Multiple Sclerosis. A good team. The Best of the Best.
I still walk with a cane. Minds active. get around, fatige real easily. Research what Dr, their thoughts, brings me back to a reality, shared with only a few this entire year, of what they see, or know. The changes a reality.
Thanks for reading
Joey
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