IRON. IRON H63D gene Hereditary Hemochromatosis

      Its been a while, but refresher course in iron.   A double H63D gene was found  in 2018. A rare for it to overload iron over load, but did. 17 trips to phlebotomist, or vein puncture, to take blood from me. see prior posts.

Do labs every three months. I was left iron deficient for three years. I found if I stopped my turmeric curcumin regime  a day, and ate beef liver with onions, and restarted my regime, it brought my iron back into balance in 2022. A trial and experiment.

 As there had to be a way to close the iron valve.

Since I have Primary Progressive Multiple Sclerosis, some items get blamed, where there may be a different diagnosis. So thus bouncing between Drs, who all have their own theory.  Last October 2021, my hemoglobin was high again. To many red blood cells, or to large.  Thus prior you tube videos to explain. But No Iron to dispose of with a phlebotomy. 2022 was year I got iron increased, by trial. And testing.  A three year low, or anemia that played a part.

Labs again in a few months, to check, and double check endocrine system. A protocol, a Specialist put me on last year  in 2021 helps tremedously but that's for another blog.

I receive Botox every three months. Injected deep into calves, inside and out, thigh muscles, and into neck muscles on both sides, and into right shoulder. The right arm was added last time.  Another blog to talk about, but helps a great deal.

But I did not want to loose these links that help understand... Just more info to listen to.

        

Iron Deficiency Without Anemia – Common, Important, Neglected

        Transferrin   Saturation

Another great site I found on iron, and related diseases

http://checkiron.com

                                                       Iron Physiology

Gastrointestinal | Liver Metabolism, Protein Synthesis & Storage

   

Approach to Anemia

Join my blog, so I know my readers!

JoeY

Neurologist and specialized Drs

 

Every Dr has their Speciality that I see for multiple conditions. The year 2022, made it this far with Primary progressive Multiple Sclerosis.  Awaiting new medicine to come out, as my body makes everything off the table, except Copaxone and twenty plus medicines.

So I stick to what is working thru my lengthy list of medicines, and what they are used for. Vitamin D3 in high doses, followed by endocrinologist every three months. A GI Dr, A Kidney Dr, A Heart Dr, a blood Dr, a endocrinologist, Eye drs, The list goes on.

A B12 test was ordered to check my levels, as they were low a few years ago. This you pee out any extra.  I see my blood Dr in a few weeks, as B12 can also make more red blood cells. I wonder about my other B vitamins. I do not need more red blood cells, as that makes more hemoglobin, which in turn bounces me back to another Dr.

I was on high dosage of Biotin a few years back, vitamin B7.  I measured pure powder on a scale, following study, but on real biotin, followed by endocrinologist.  The vitamin affects many lab test, and I had to stop for my endocrinologist. The high dose biotin trial, never panned out with good results anyways.

Currently my labs look good, but adding in certain vitamins could cause problems.  I have hereditary Hemochromatosis, with the Rare H63D genes, both gave me iron overload in 2018/9.  I did 17 phlebotomy or veinpuncture to resolve the iron, but that left me iron deficiency for three years. That has its own set of problems, of Anemia, and items shown how blood is made from the bones.  I will have to go into detail in another blog.

Anyways, being unique in getting all the side effects of medicines, especially generic, My team works hard to ensure I stay on name brand.

A Testosterone test came back with erroneous readings. My Dr thought the batch that my pharmacy sent was bad. She made three attempts at over a hour each to get a replacement medication.  They decided to play Dr, and Not Send any new unit, so I could retest. Every day she sent a new prescription in, talking to pharmaceutical department, it put them shipping out the next 90 day order by a few days, of when my regular order was due. Three long emails were sent from me also about the problem, that they answered to call them again.  This comes to who is playing Dr.  

My three month labs will come due, right before my next shipment comes. A waste of resources, from the drs, the labs, The largest mail order pharmacy. They asked if I wanted to file a complaint. Hmm.. "Like bitting the tail of the Dragon that feeds you"

Photo credit wixmp.com

Back to Experts I utilize at UC Davis, Sacramento. Many items have been added to my MS over the last ten years.  I lost count, at over twenty experts looking into certain areas that has a cause and effect.  I do much research giving experts a a different viewpoint sometimes on new studies or of which came first, as their is no cure.

This blog, to help keep scientist and followers updated to a point.

A lot has gone on this last year, I may write about in another blog, but being bounced around like a ping ball between Drs right now. Just not much research has been found because of my unique mess, of different specialists needed. Was offered two new ones, but have declined until I get my other specialists updated and involved.  

Everything takes time.

Joey