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Friday, September 25, 2020

Multiple Sclerosis and IBC

One of the news digest has my story

Multiple Sclerosis has many aspects.  Some items people do not want to talk about, such as constipation or Diarrhea.  My partner found a helpful solution, not to solve the ongoing problem, but one to help in the bathroom.

  Most Guys would never think of using a bidet, and think they are only made for women, and a special toilet bidet needed installed. This is not the case, and this gadget I have found to be one of the best.  It can be made for a man or woman. It can be heated, or unheated. Many versions.


This one hooks right up to your existing toilet.

Bathroom Luxury Meets Eco-Friendly

I was skeptical, but had mentioned one for my birthday to my Partner. A type of unexpected present for our home we call the Treehouse. This Winter I may be going WOW with cooler water!

A easy installation, and wonder why they are not being used everywhere.


It saves toilet paper, as all you are doing is patting  yourself dry.  We will have hand towels  next to the bathtub shortly for  just this purpose.

 since we live are remote, and on a well, and septic, this will help our system tremendously.


https://luxebidet.com/ref/JoeY/





I am always looking for answeres or help. 

Pathways to bowel or bladder dysfunction are common with Multiple Sclerosis. I read many blogs about this on  https://irritablebowelsyndrome.net the newest

https://irritablebowelsyndrome.net/living/wasted-time/



https://multiplesclerosis.net/living-with-ms/digestive-problems-diarrhea-embarrassing

https://multiplesclerosis.net/living-with-ms/digestive-problems-diarrhea-embarrassing

Yet another great link!



I did find Most Multiple Sclerosis people are low in Bile Production.

Thus the alternating constipation or Diarrhea

I found this government paper on 

Butyric acid in irritable bowel syndrome

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4027835/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4027835/

"a group of short-chain fatty acids and is thought to play several beneficial roles in the gastrointestinal tract."

These symptoms people have cross over from Multiple Sclerosis to daily people. One report said one in six people live with IBS.  Sometimes caused by food we eat, or diets we try.

I am being a scientist with the help of a great GI Dr, his MD assistant, and a Wonderful Endocrinologist.

 I run a list of what I have found doing research on products. This is not something I would recommend anybody doing, without talking to their specialists.

Since being diagnosed with IBC-C, bowel problems run in the family from diverculitis, to bowel issues, and generation before me having some type of bowel issues.

My GI has me on Linzess, A powerful medication. That I use with lactulose 50-90 mil to provide relief. Simethicone is used for the Bloat. 

Ox Bile was tried, colon lining nutrition of calcium butyrate, magnesium butyrate, and butric acid.  Digestive support Pancreatin of Amylase, for carbohydrate digesting, protease, for protein digesting, and lipase, for fat digesting enzymes.  

Sodium Butyrate Bodybio.com had butric acid, which is a medium chain triglyceride MCT. It provided microbiome support, improved digestion, healthy metabolism.

Also on my regimine is Ceylon Cinnamon.Horbaach.com  It is known as the true cinnamon. Used for supporting healthy weight,  heart, circulatory, and joint health. Blood Sugars it also helps maintain.

My Heart Dr put me on Vascepa, Vascepa.com  for high Tryglicerides.  Berberine is also taken.

I take vitamin D.  People with MS are low in vitamin D, but have your blood work checked by a Endocrinologist before starting, and monitored.

I have a new list I went over with my specialist, some amino acids, some mushrooms, some minerals to help digestion, and restoration sleep. The Dangers of some supplements that contain Griffionia Simplicofola seeds known as Hydroxtryptophan or "5HTP", as serotonin overload syndrome can occur due to other MS medicine I am on.

A warning that all supplements are not the same, or some may be low quality, or not even have what is listed in it.  Wal-Mart, Walgreens, GNC all got in trouble years ago.

I try one at a time, make notes for few weeks. May try a combo that works better. Research the manufacture. I will have to make a second blog, on the next set of supplements, and which ones worked for me.


Let me know of ones I may be missing, or companies can send me a sample by emailing me for address


One of my stories was just published in irritablebowelsyndrom

https://irritablebowelsyndrome.net/stories/ibs-ms/

https://irritablebowelsyndrome.net/stories/ibs-ms/

Thanks for reading, stay safe.

JoeY




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